Monday, February 15, 2010

Touching Bases While We Wait ....

This is just an interim update while we wait for Steve’s surgery on March 15, which I just realized is a month from today.

First of all, thank you so much for all your continuing prayers, calls, emails, and comments here on the blog – you can’t imagine what a difference you all make.

To recap where we are right now, for those of you asking or who may have missed the posts below, we will be going to the University of California at San Diego for Steve’s surgery on March 15. The surgery will be done by Dr. Andrew Lowy who is an internationally recognized expert in treating this rare form of cancer (pseudomyxoma peritonei). Also, the post surgery team at UCSD is trained and experienced in caring for recovering patients that have had this type of rare and extensive surgery.  The surgery can be from 8-15 hours long and recovery time in the hospital is expected to be anywhere from 10 days to 3 or 4 weeks, depending on the length of the  surgery and what they have to do.  We’re so thankful for answered prayers and a quick Kaiser referral to USCD and Dr. Lowy.

A couple of things to note:  1) to read details of what the surgery entails scroll down this page to the post below from Jan 27.  Surgery details are highlighted in yellow.  2) to read more about Dr. Lowy and his qualifications go to   http://health.ucsd.edu/news/2007/7-11-Lowy.htm
 
I’ll be staying at the hospital the whole time, and Joelle will be taking classes in Pasadena but plans to be at the hospital the first few days and then as often and regularly as possible.  We are getting a condo right across the street from the hospital that they make available at a low cost to families in these situations.

While we wait for March 15th we are balancing working through a medium sized “to do list” with spending lots of time just being together and enjoying friends, family and each other. 

Our friend, Debbie, is a nurse who has worked pediatric oncology and we have taken her input to heart. She writes, “As much as possible in the weeks before the surgery, find time to just be - with each other and with friends. Ask for help if you need it …… 

And rest in the Lord for He loves and cares for you both.”

Reminds me of a verse I learned when I was about 3 yrs old …. “Casting all your cares upon Him, for He careth for you.” (I Peter 5:7)  Who knew that some 60 years later (ok ~ 61 years later)  God would use these words, so child like in their simplicity,  to be such a comfort in these days of just waiting.

We're so thankful that Steve is in no pain at all though does have some discomfort as the fluid in the abdomen keeps building back up.  He doesn't have much of an appetite, though he's eating anyway :-)   We get out and about most days, sometimes running errands, eating at favorite places, visiting SoCal sites, talking, generally enjoying the beautiful weather these days and just being  together. We also do a fair amount of laying around the house, watching tv, reading, puttering in the yard (well, Steve does this), and taking naps  :-)

We love you all, and again, thank you SO much for your prayers, calls, comments here on the blog, and emails.

~ Keren

Thursday, February 4, 2010

Got The Date!

March 15th will be the surgery date! We would have liked it sooner but for several reasons, this was the optimal day. The doctor assured us that medically, it doesn't need to be sooner, so we're going with his recommendation. One upside to the waiting will be that we'll have unhurried time to work through the 'to do' list we've been putting together ~ everything from legal stuff to getting the dog groomed :-)

We probably won't have a lot to add to updates until the time gets closer, but we do ask for your continued prayers. Also, remember our email is ksagehorn@adelphia.net and we're always near our home or cell phones :-)

We love you all, ~ Keren

Tuesday, February 2, 2010

They're Going To Do The Surgery!

We saw Dr. Lowy this morning and he said that surgery is very much indicated in Steve’s  case, so we’re going ahead with it!  He explained everything, which is pretty much as I described in the post below on January 27th.  They’re checking to see if one of their two low cost family apartments is available for us during the time he’ll be in the hospital (2 weeks to a month) so I can be there all the time and have a place to sleep other than a cot in the room.  Joelle will maybe/probably take classes in Pasadena and still wants to be with Steve as often as she can.  I’ll drive up every Wednesday to be with my mom.

Dr. Lowy’s office is today getting further authorization from our insurance (Kaiser) and its pretty much a forgone conclusion that they’ll approve it since they already referred us to him.  They are also trying to book an operating room as soon as possible. Currently they’re booking for March 12th but the wonderful nurse/assistant is trying to do some maneuvering and get a much earlier date. We should hear within a day or so what the actual date will be.

Steve’s feeling very encouraged and optimistic about this, as are we all.  I’m not sure I would have believed that we could be SO thrilled about having a brutal, 8-15 hr. surgery like this, but its amazing how your perspective changes when it’s the only/best option!  After researching his excellent work and meeting with Dr. Lowy we have the utmost confidence that God has answered our prayers and put Steve with the best doctor for this.

Thank you all so much for your continuing love, support and prayers.  The referral in itself is an answer to prayer, and then that the surgery is possible in Steve’s case is….well, we’re SO grateful and thankful.

We’ll let you know as soon as we get word of a specific date.

Love you all,  ~ Keren

Monday, February 1, 2010

Got The First Appointment!!

We have an appointment to see Dr. Lowy @ 8:30 AM tomorrow, Tuesday, Feb 2!  They said by the time we leave there we'll have a treatment plan.  She said he may want to do a surgery to look around in there before the big one, but we'll have to wait and see.  We're all SO encouraged by this.

My friend Mary sent the following link which I hadn't seen and which has been really informative.

http://health.ucsd.edu/cancer/patcare/hipec/

Continued thanks for your continuing love, support, and prayers.

more later,   ~ Keren